Showing posts with label disabilities. Show all posts
Showing posts with label disabilities. Show all posts

Saturday, January 2, 2010

Organization for Autism Research

Danielle,



I apologize for my delay in responding. Good luck in your interesting project.



When we break things into unit costs, there are a number of things that $2.00 will buy relative to OAR’s mission and programs (OAR = Organization for Autism Research). Here are a few examples:



$2.00 will pay for:



1. The production cost for:



· One Understanding Asperger Syndrome: A Professor’s Guide DVD. An instructional video intended to educate college professors teaching students with Asperger Syndrome.

· One Life Journey through Autism resource CD. A CD with copies of the five publications in OAR’s Life Journey through Autism series, four Spanish translations, and the Best of The OARacle, a compilation of the best articles in OAR’s newsletter from 2002-2007.



2. Small toys or snacks used as rewards or incentives for children participating in autism research studies.



3. Postage for four “thank you” letters to people making donations in support of autism research.



I hope these examples are useful for your purposes. Thanks again and good luck.



Mike

Michael V. Maloney
Executive Director
Organization for Autism Research
2000 N. 14th Street, Suite 710
Arlington, VA 22201
mmaloney@researchautism.org
www.researchautism.org

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DEBRA


Dear Dani,

We looked at your site and it looks fantastic so we thought we would like to add our two bits to the project. Here goes:

What can $2.00 buy for DebRA – Dystrophic Epidermolysis Bullosa Research Association

For $2.00 DebRA can send out 3 educational DVD’s to families of children who are attending school for the first time or switching schools. It is so important that the teachers and students who will be welcoming an EB child to their class know what to expect. This DVD explains Epidermolysis Bullosa in the simplest terms. It compares EB to a lawn where there is the grass on top, roots of the grass burrowing into the dirt and the dirt. If the lawn didn’t have the roots to fasten grass and the dirt together ,there would be no connection so the grass would blow away and eventually so would the dirt. When someone has the genetic disorder EB, the top layer of the skin, the epidermis, is not “connected” to the bottom layer, the dermis, so the slightest touch causes severe blistering, inside and outside the body.

Kids are afraid of what they don’t know, if they see this video and talk to the EB parent and the teacher and get all of their questions answered before the EB child starts school it makes the transition for everyone involved to go smoothly. Kids can be very accepting; they just need to know what to expect and what the limitations are for the EB child and how to interact with them. If everyone has been prepared in advance the EB child becomes just another classmate. So, for $2.00, three DVD’s to three separate schools can educate each school’s teachers, and students – who will go home and tell their parents about their new classmate with EB and it goes on and on. As of today there is no cure or treatment for EB only wound care, bandaging and pain management. DebRA is busy raising awareness of EB so we can raise the money needed to help and support EB patients and their families and to help fund research towards a cure. 89.2 cents of every dollar donated to DebRA goes directly to patient services and research.

Pennie Cannon

Executive Assistant

debralogo_rgb

DebRA of America, Inc.

16 E. 41st Street , 3rd Floor

New York, NY 10017

212 868-1573

212 868-9296 fax

pcannon@debra.org

www.debra.org

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New Avenues To Independence, Inc.

Thank you for your e-mail. We are impressed by your project devoted to the community. We think you had a wonderful idea to convey… a message of hope!

Our organization, New Avenues to Independence, is dedicated to enhancing the lives of individuals with disabilities residing in Northeast Ohio. Each year, we provide residential, housing, therapeutic, vocational, and recreational services to over 500 adults and children. Our mission is to provide opportunities for people with disabilities and special needs to become more independent and productive members of society by offering the highest quality support services and developing innovative and inclusive programs.

To the individuals served by our organization, two dollars means a lot. All of our adult clients are low income or have no income and depend on Medicaid as their only source of health insurance. Medicaid provides no money for incidentals, such as the list below of much needed items. Here is a list of items that our individuals use on a daily basis and cost no more than two dollars:

Tweezers 99 cents

Nail Clippers $1.49

Nail Files $1.49

Band aids $1.79

Small hand sanitizer gel 99 cents to $1.69

Bottle of Alcohol $1.79

Bottle of hydrogen peroxide 99 cents

Cotton Balls $1.49/bag

Dental Floss $1.79

Box of Kleenex $1.69

Cough Drops $1.49

Tums 99 cents

Bar of Soap 99 cents

Toothbrush $1.89

Toothpaste $1.49

Chapstick 99 cents

Pillbox (organizers) $1.69

Epson Salts $1.59

As you can see, this is a long list of useful items, so two dollars is meaningful for us! We appreciate your efforts, and we are grateful for the help that you may provide us in bringing attention to the individuals served by our organization.

If you have any questions or I can be of further assistance, please contact me. Best wishes and good luck with your project!

Karen Knavel

Community Relations Director

New Avenues To Independence, Inc.

17608 Euclid Avenue

Cleveland, Ohio 44112

Telephone: 216.481.1909 x224

Fax: 216.481-2050

E-mail: kknavel@newavenues.net

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